Patient-led. Evidence-informed.
Canada declared the emergency over.
Long COVID Action Canada is an independent, patient-led advocacy initiative working for better research, care and policy in Canada.
We turn patient concerns into clear requests to the institutions that can act, create practical ways to take part, and follow up in public. Choose an action that fits your energy.
— days since COVID-19 was declared a pandemic.
Canada stopped counting — days ago.
Most urgent · FALCON trial
McMaster plans to test the commercial Lightning Process on people with Long COVID. We’re asking for an independent review and public trial documents before anyone is recruited.
What we’re seeking
Three core goals guide our advocacy. Our campaigns are practical steps toward them.
Research that explains Long COVID, improves diagnosis and leads to effective treatments.
Timely assessment, knowledgeable clinicians and ongoing support.
Policies that address disability, income, work, education and daily living.
Take action
Help someone find patient-led campaigns for better research, care and support. Send a message or share on social media.
Share LCACFind your MP and make a letter asking for better research, care and disability support.
Write to my MPSupport the call to pause recruitment for an independent review of McMaster’s Long COVID trial.
Sign the petitionTimes are estimates. No sign-up needed.See all actions
Protect participants and strengthen Long COVID research.
Know where to get assessed, how to be referred and what ongoing support is available.
Turn a federal response into concrete commitments.
Ask for research that answers patients’ treatment questions.
Seek a Canadian access pathway and support for research.
The situation in Canada
The last national survey covered June 2023. No newer national figures have been published. These are the most recent numbers that exist.
Canadian adults had experienced long-term symptoms after COVID, about one in nine.
still had them as of June 2023.
had missed work or school because of those symptoms.
who sought care said they did not get enough treatment or support.
Source: Statistics Canada / Public Health Agency of Canada, Canadian COVID-19 Antibody and Health Survey follow-up, reference period June 2023, published December 2023. See the data ↗
Updates
Founded by Robert DeRosa, LCAC is an independent, patient-led initiative. We turn concerns into clear institutional requests and track what happens.
Connect with people working for better Long COVID research, care and policy. Take part when you can.
Want to share your skills or capacity? Use the full form · Privacy
Suggest a Long COVID research, care or policy issue for us to consider.